Specialist MS Nurse Support - Debbie Robilliard
I am now very well established in my role and thought this would be a good chance to provide you with an overview of what I do and how the MS service can help. My job starts at the point of diagnosis and continues through your MS Journey and it can be as varied as the weather.
I provide information and advice on a range of symptoms and treatments and can link into other health professionals as needed. We now have a very good team working in the MS arena with the latest member being a neuropsychologist.
I am delighted to see how much the service has developed over the years. Here are some of things we can offer.
Monthly MS clinics are now fully established. The visiting neurologist has also increased clinic support. We now are fortunate to have access to a wheelchair service provided by Southampton ,who visit nearly every month and hold a clinic. This is now run by Alice Flower.
Getting to grips
A 6 week course, for the newly diagnosed. This course will provide information about MS and develop various strategies for coping with variety of symptoms.
I am delighted to be working along side a very talented Physio, Kitty Rabey, and have drawn on her wealth of experience and knowledge. She has been a valuable asset to the team and we continue to strive to improve services for MS.
The is a group and individualised programme and is run over a few weeks and is aimed at those who have had MS for some time and battle with the fatigue. It provides tips and tricks and coping strategies.
This is a new programme offered by St John and is aimed at carers/partners who care/live with somebody with MS and provides an opportunity to share your stories, learn more and be given practical advice to help cope with the unpredictable nature of MS.
This is a well supported session held once a month at the Cotils. All are welcome but the group at the moment tends to be most;y in the 40 plus age group. Activities range from just a chat and cake to fantastic craft sessions. We are grateful to Liz Hendry for her continuing support in these afternoons.
This is my newest social group and is aimed at the people in the earlier stages of MS. We generally meet in a pub or attempt things like yoga. We have done ladies nights and makeup parties, and plan many more events.
Both the coffee afternoon and Mission Social groups are designed to provide support and meet others in the similar or same stages. We try to steer away from MS topics on these days to allow a sense of normality even if it is for only a few hours.
Information and literature
I now have a vast array of leaflets and information on pretty much everything to do with MS. So if you require any information please don’t hesitate to contact me. For information about Disease modifying therapies (Document produced by the MS Trust UK), please follow this link.
Voluntary Car and Handymen Services
A car service, staffed by volunteers drivers, is available in Guernsey to assist people who don’t have transport to attend important events such as doctor’s appointments or visiting sick relatives in hospital.
People who cannot use, or cannot afford, public transport and don’t have friends or family to help, are very welcome to apply to use this service by speaking to their doctor or social worker who will contact the service on their behalf.
To use this service you must be over 18 and able to get in and out of a car unaided. Once registered, users are able to request the service when they need it by contacting the service coordinator.
People in need of transport, who are not able to get into a car unaided, or who need to be transported in a wheelchair may take advantage of the States run "Handymen service" . The service is based at the King Edward hospital and registration is again done through referral from the community nurses, doctor or social worker.
I have an open referral policy and can be referred to by anybody e.g. person with MS, carer, GP etc. I will make contact with you as soon as possible.
My contact details are:-
Mon,Tues,Wed 9-5 and Thurs 9 - 12.30 based at Princess Elizabeth Hospital ext x 4872 Email firstname.lastname@example.org
Community mobile 07781 133082
Weekend/ out of hours (on call, emergencies only) Contacted via switchboard 725241 only.
Providing local support, advice and education for people with MS.