Update on support/service so far

Neurologist/ local clinics.

The island is now very lucky to have access to a visiting neurology service and this has been a tremendous boost for the service. The availability of this service will greatly improve the support for all patients locally. The service will work in conjunction with our existing MS clinics with Dr Turner.

Botox

As mentioned before Botillium toxin (Botox) therapy is now available and we have has some really positive results.

Wheelchair service

We are delighted to inform you that we now have an occupational therapist looking into the feasibility of setting up a local wheelchair service and are currently researching all aspects of this service. We will keep you updated!

Support network

The support for local patients continues to improve. We are delighted to announce that a sitting service has now been developed through the community and respite service. The idea of the service is to provide support to carers by allowing some one who is appropriately trained to sit in with a patient while carer goes out for shopping, hair do, or just to go out with friends. The service can offer week day sessions up to 2 hours per session and also nights and weekend options can be explored. If you are interested in this, please contact me for further details.

Regular coffee afternoons aimed at the mainly secondary progressive element of the condition has now been set up with really positive outcomes and continues to be well supported. Dates for this can be found on the events section of the website.

A recent carers information day at the Cotils created tremendous interest and based on this further carer days will be arranged. These days out allow carers to enjoy a pamper day but with the added reassurance that their loved one is being looked after. The Cotils will arrange sitter etc

Exercise

A wheelchair exercise class has been set-up with Susi and again the early feedback is really positive and we are hoping to expand on this in the future.

Future developments/Projects

Further support/social groups for the 20-40's amongst you

Children's support network

Information days such as living with fatigue

Continual carer support

Telephone clinic or carer drop in sessions

What you can expect from the Service

A friendly, approachable and supportive service with all enquiries handled in a prompt and sensitive manner. People with MS will begin receiving regular assessments, and follow-ups either at home, or in the clinic. You will receive professional advice from all disciplines and support during any crisis now matter how big or small.

Contacting me

I have an open referral policy and can be referred to by anybody e.g. person with ms, carer and GP etc. I will make contact with you as soon as possible.

My contact details are:-

Mon Fri 9-5 based at KE VII

Tel 725241 ex 2263 Email drobilliard2@hssd.gov.gg

Community mobile 07781 133082

Weekend/ out of hours (on call, emergencies only) Contacted via switchboard 725241 only.

Providing local support, advice and education for people with MS.

Debbie

MS Nurse